Dan has now had an EEG and an MRI brain scan with dye.
For some unknown reason the seizures have, at the moment, stopped. This is good news but of course it means Dan has had the tests done at a time when things have settled. We go to the neurologist on Monday 16th December for results. In a way I hope they show something just so we know what we are dealing with. This cannot have happened for no reason?
Although the neurologist is based in the same hospital as Dan's Vasculitis doctor he did not even know what vasculitis was let alone the effect on the brain. His clinic was next door to the normal clinic but he did not even know what med's Dan is taking. We shall see.
In the meantime, Dan's GP called to say he has to go and have further blood tests in January as there is something not right with the thyroid results. Dan is losing weight at the moment and has patchy hair loss and is still generally unwell. I don't know how he will take it if he has to take even more medication.
he seems to be coping OK with the Imuran etc so I am hoping things settle. He has had some rashes break out but the night sweats have stopped and his lungs seem clearer. The immunologist has asked Dan to see a dentist as he should have regular hygienist appointments as apparently it is easy to get gum infections that can cause problems. Dan looks after his teeth well so it is just a precaution.
It will be good to get the results out of the way.
I will post again after the 16th.
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