So much for the neurologist saying all is ok. I know the scan and the EEG came back clear but Dan had a huge episode during the night (Christmas Eve 2013). Considering the neurologist did not seem to know much at all about Vasculitis I don't feel so reassured today. Something is causing this to happen. Dan was really scared as it lasted so long. He was semi-conscious again but unable to call out or do anything to stop the body jerking and neck twisting.
I do feel that even our immunologist is a little out of her depth. She has told us she is not an expert and she will seek help when needed so I think we will have to try and look into this further.
Maybe I am just over protective but I just have a niggling feeling this is more than "sleep disturbance".
Wishing everybody a Happy Christmas and healthy New Year.
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