11/10/13
Well, the appointment at the hospital cannot come quick enough. Dan has now had 10 or 11 seizures during the night. A couple of nights ago he had 2 in the same night. This morning, he was tired and fell asleep at 11.am. He had only just drifted off and had a seizure. Yet again his neck was jerking to the right and he felt paralised from the neck down. He said he felt like he could control his breathing but is unable to call out. He is getting quite scared now. This is 4 seizures in 1 week. The only pattern he can come up with is that he is always dreaming when the seizure wakes him which suggests it is something that is happening when he is in REM sleep. I cant think of any new meds or anything else apart from the UV that would do this. Dan has been into hospital with TIA's and had a problem with the vein bulging on his temple so somehow I just think this is connected. I dont know if it is just because dan is getting paranoid but he still says he gets head pain in just one area. I just dont know what to think.
He takes all his meds as directed and we just cannot see any other pattern to all of this.
I dont believe this is stress related. My Dad passed away on 23rd September 2013. Dan was very upset but the seizures had started in May so again cannot be connected.
The night sweats seem to have stopped at the moment but Dan has been saying he feels generally itchy and is taking a high dose of anti-histamines. he is off of steroids at the moment and is very reluctant to go back on to them.
We still have a week and a half to go until the hospital appointment then I guess we will have to wait agin for tests to be done. Nothing happens in a hurry under the UK NHS.
Hi Elaine, I am sorry about what has happened to Dan. I was diagnosed with urticarial vasculitis 2 months ago. The dermatologist had prescribed me with antihistamines and colchicine. Sadly, I wasn't reacting well with both medication. I decided to look for alternatives and sought help from my local TCM. As urticarial vasculitis is due to the inflammation of blood vessels, he prescribed me herbal medicines to treat my illness. He then explained that there is too much heat in the blood, causing the blood to be inflamed and broken. I had consulted him thrice in total and I'm seeing drastic improvements. The rash had all subsided without consuming the medication prescribed by the dermatologist. Many people have different opinions about TCM, but I'm a sufferer myself and this is based on my honest and personal experience with UV. I know that most UV sufferers will need to consume steroids if they're not reacting well with other medication. But in actual fact, the dosage of steroids and antihistamines may need to increase with time. These will do more harm than good. TCM works by analyzing your internal body system in order to eliminate unwanted illnesses. Hope these helps :)
ReplyDeleteAny ideas help. It seems that UV can manifest itself in so many ways, Dan's has progressed. By the time the rash came he was due for stomach surgery to close a valve causing long and sustained re flux that he had pre-cancerous Barretts esophagus. Now the UV has has shifted up to his brain! The inflammation can be anywhere from your skin to your brain it seems. Everything is worth trying. I have pernicious anemia and need B12 shots. The battles with GP's to get enough shots is so bad I now self inject. If something works for you, don't stop. Good Luck. Elaine
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