2nd January 2013

Well, we had a visit with Hilary today. Dan has finally got over the vomiting stage of the Imuran. His blood tests have come back OK too which is brilliant news.
Dan will now reduce the steroids to 3 a day instead of 4. I am a bit worried about this as in the past, if he has gone under 4 the immediately flares. I know we have to try, and that is the whole point of the Imuran, to try and reduce the steroids.
He has had severe stabbing pains around his heart tonight but maybe this would have happened on 4 steroids? He also said he felt itchy all over which usually happens if he goes below 4 steroids. Everything is trial and error and I will monitor him over the next few days. Hilary has asked for urine tests etc and will see Dan again in 4 weeks. He had a blood test today and will need another blood test in 2 weeks.
Finally he is able to eat a little bit more. He has got very thin due to the constant nausea.

I am worried about how things will go now. Last winter Dan did improve a little so I hope it is the meds helping him and not the fact that there is no pollen in the air. As usual, it is a waiting game. A very worrying one. He has not had a mini-stroke for a few weeks now so I hope that lowering the steroids does not kick things off again.

3rd January 2013

Down to 3 steroids and nothing major has flared.....yet. Dan still feels itchy and is getting the usual stabbing pains that he describes as pains in his heart. Palpitations too but this is nothing to what was happening a couple of months ago. We will just have to wait and see how tomorrow goes.