2/09/13
Well, apart from night sweats and the odd incident of numb tongue I thought things were improving for Dan. He has managed to wean off of the steroids and compared to previous years doing well.
Over the last 3 months however, Dan has twice had what we believe to be some sort of nocturnal seizure. He remained semi-conscious (scary) and Hilary wanted to wait to see if this was a one off thing before this was taken further.
Last night, well, early this morning, Dan had a much more drastic seizure. As before his neck kept jerking to the right, he was paralised and had blurry vision. This time he felt it was affecting his breathing and he tried to shout for help about 8 times but the sound would not come out. As soon as it was over he felt sick.
We have just got back from the GP who has made an urgent referral to a neurologist as he believes this is Focal (partial) Frontal Lobe Epilepsy. Dan is really upset and still in shock after the incident. The GP believes Vasculitis could be the culprit.
This is now the third event and we have realized that each one was preceded by a headache. He has also been having the numb tongue again as well. Dan is now saying he is scared to sleep as he cannot cope with this happening again. I hope the neurologist will be able to do something.
