Urticarial Vasculitis. A blog about the journey we have been through with our 21 year old son while he battles this illness. Imuran. The new drug he will be taking.
Saturday, 29 June 2013
29th June 2013
Well, the pollen count has risen and Dan is not feeling too good. He has been complaining of strange sensations in his head and for the last few days he has felt nausea. He also has a chesty cough. He is still free from any rash which is a good sign. I am convinced the Imuran and the new hay fever spray, Avamys, is working well.
Wednesday, 26 June 2013
June 2013. Pollen Problems
Although Dan is using antihistamines daily, Avymays Spray for hayfever and steroid inhalers, he is now getting real breathing problems. He sounds like a person having an asthma attack but we know it is a severe reaction to pollen. Dan is having sharp pains in his right lung which are so painful they cause him to sweat. All we can do is use the Ventolin Spray and carry on as best we can.
Wednesday, 12 June 2013
12th June 2013
Well, the pollen is kicking off and so is Dan's condition. Hilary thinks the pollen issue is due to a mast cell disorder connected to the Urticarial Vasculitis. Dan was complaining of wheezing and chest pain during the evening of the 11th, although he is fully dosed up on anti-histamines and sprays etc. His left arm felt like he was getting electric shocks. The UK pollen count is due to remain at Moderate for the next few days so I will continue updating.
Tuesday, 11 June 2013
Monday, 10 June 2013
June 2013.
June 9th 2013
Here we go again. The pollen has arrived along with the problems.
Dan has started night sweats, swellings, numb tongue and an apparent night partial seizure. Dan was aware it was happening as his neck twisted and jerked to the right but he was unable to move. Earlier that evening he had a swelling over his left eyebrow.
Dan reported that although it sounds weird, when he went to bed he felt a sort of buzzing in his head. We will have to watch and wait to see how this progresses. Dan is on 2 steroids at the moment and has just started a new type of steroid inhaler to replace the Seratide.
Dan also has a swelling on his inner wrist again. The weather here is cold for June so at least I know the night sweats etc are connected to the pollen count rather than heat.
The Imuran and Plaquenil seem to have controlled everything over the winter but it seems we are about to enter a new phase.
Here we go again. The pollen has arrived along with the problems.
Dan has started night sweats, swellings, numb tongue and an apparent night partial seizure. Dan was aware it was happening as his neck twisted and jerked to the right but he was unable to move. Earlier that evening he had a swelling over his left eyebrow.
Dan reported that although it sounds weird, when he went to bed he felt a sort of buzzing in his head. We will have to watch and wait to see how this progresses. Dan is on 2 steroids at the moment and has just started a new type of steroid inhaler to replace the Seratide.
Dan also has a swelling on his inner wrist again. The weather here is cold for June so at least I know the night sweats etc are connected to the pollen count rather than heat.
The Imuran and Plaquenil seem to have controlled everything over the winter but it seems we are about to enter a new phase.
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